Tag Archives: Mental Health

Technical Difficulties – 2nd Edition


Image Description: a “Very Demotivational” meme, which is a picture of a panda trapped on a branch, with a black border around the picture with white-text captioning down the bottom of the picture: “Technical Difficulties: We has them…”

I’ve been thinking of starting up (surprise, surprise!) another writing project, the big problem is that I’m currently torn between what kind of platforms I should use, I don’t know if my intended project is more suitable for Podcasting, a YouTube Channel or perhaps a combination (somehow?). Perhaps I should discuss my new writing project and maybe it’ll help me with he decision process. I want to set up a platform where I talk about Mental Health and ADHD (as well as some related topic things like stim toys). As I’m not a qualified therapist or counsellor, I would only be able to talk from the podium of my own experiences, so the video path would involve journal-like videos talking about my diagnosis, my personal diagnostic process, as well my interconnected mental health problems.

I’m going to be honest, YouTube has a large market on the “journal/confession” style of video, and while that results in great content like Katie Morton’s YouTube Channel and Annie Elainey’s YouTube Channel, it leaves me wondering “What do I bring to the table that is unique and different?” and “how can I possibly stand out?” See, the funny thing is that there is a lot of ADHD journal-style channels already out there, usually they have ten videos and then they haven’t been updated since or they have been updated but there are irregularities in postings or big gaps.

The problem is that I understand only too well why that is the case, I’ve been doing the same thing too pretty much all my life and I don’t want to do that anymore. I don’t want to embark on yet another project, invest a lot of my time, effort and limited financial resources into a platform only to give up half-way through. And, yeah, I’m perfectly willing to admit that my scatter-gun approach to… pretty much everything might be apart of the problem. My usual method of throwing things at a platform and seeing what sticks isn’t working for me or isn’t working as well as I’d like it to. It’s not that I’m not willing to give both a go, its not that I’m not willing to take risks, what I’d like is some feedback before I make the attempt.

What’s the Project going to be about?
My objective is create channel (regardless of whether its YouTube or Podcast) that covers the following:

  • journal-style content of my personal mental health and Adult ADHD diagnosis process.
  • Facts About ADHD – episodes that focus on the facts and resources regarding ADHD (like books and support groups available). I want these episodes to have a more Australian approach to it and my focus will primarily be Adults with ADHD, because unfortunately the majority of resources currently available tend to be more geared towards children with ADHD and their parents.
  • Interviewing Mental Health professionals or people involved with positive Mental Health support (like social workers or support groups)
  • Mental Health Q&A videos (possibly?) or stuff that’s connected to Mental Health like Stim Toy reviews, Bullet Journal stuff, or Journal exercises

I suppose I should include the possible pros and cons of each platform.

YouTube Channel Pros:

  • Dramatic reenactments with my collection of Weighted Plushies: this is the aspect of making videos that I’m looking forward to the most. I’m already thinking and detailing in my mind the jump-cut sketches I could possibly make.
  • Editing: I enjoy the editing process of film-making, I’m currently using Adobe Premier, which is great if not a little complicated (I’m doing a Skills Share tutorial for it, just to make sure I know exactly what I’m doing). There’s also lots of help and tutorials online.
  • Equipment: I already have all the required equipment to start making videos (I found a tripod at Big W for roughly AU $25), I could literally start tomorrow if that’s what I wanted.
  • Audience Interaction: YouTube is a great method of interaction and for building a community and there’s a proven track-record of people building successful and supportive mental health communities. It’s a big component of why I want to do this.

YouTube Channel Cons:

  • Super Awkward: When it comes to making movies and taking photographs, I’ve spent most of my time behind the camera, and I’m pretty good at directing (aka telling people how to do their jobs). But I don’t have that same sense of confidence when I’m placed in front of a camera. I tried to make a short introduction video for my YouTube Channel, I tried four times to do a short 30 second clip and kept fucking up the short basic script I had devised for myself, eventually I thought “Fuck it!” and decided on doing a voice recording with my phone and pictures instead of video footage (you can view the intro video down below, don’t feel bad for laughing, the video is very much a rush job)
  • Marketing: From the research I’ve doing, a lot of the ADHD journal-style channels are created by people presumably in the USA, now this could give me an edge, an Australian woman talking about her personal experiences would be unique, but there is a risk that this is too unique and that only small percentage of people are going to interested in it. There’s also the problem that there are A LOT of people doing this already, and while I think this is awesome and I’m very much for ending the stigma surrounding ADHD and other Mental Health problems, I still need to ask myself “What am I bringing to the table?” and I’m not entirely certain that I would be adding to the conversation.
  • Interaction: Lets be honest here, YouTube isn’t known for being a safe place, where online harassment is taken seriously. While I know I have reasonably thick skin, the problem is that I don’t know if the possible good I get from this channel is going to out-weight the potential harassment I’m going to receive online. I’m not saying harassment or bullies should hold you back from doing what you want to do, because there are always going to be bullies and nay-sayers out there telling you not to try, this is more from a self-care and time management perspective.
  • Timing: I mean, with regards to filming, it’s lot more work involved in making YouTube videos in comparison to writing blog-posts on WordPress or Tumblr. With videos, you need time to film, organise a guest and/or work around guest’s schedule, edit film, possibly edit audio, publish it on YouTube, and then also make a blog-post about it on WordPress.
  • Length: I’m going to be honest, I talk a lot and at a fast pace, There’s also the problem with YouTube that videos are expected to be short (the implied maximum being 12-15 minutes) and I often feel that this time-constraint isn’t always appropriate for Mental Health discussions, a Mental Health problem can’t always be tackled in a 15 minute video, sometimes it’s more complicated than that. It also doesn’t give much time for me to answer any possible questions people might ask of me.

Podcasting Pros:

  • Comfort: I have no problems with recording myself via audio, I’m also super comfortable with Adobe Auditions (from what I remember, it’s super easy to use, although my memory isn’t the most reliable). In contrast to Adobe Premier, which is a little more difficult (or at least it is for me) and it wasn’t obvious how to use certain features like captioning
  • Experience: I have some limited experience to creating audio files due to taking a University unit Radio Production, I’m also looking into volunteering for a community radio station once a week.
  • Marketing: Mental Health Podcasts, such as The Mental Illness Happy Hour, have a proven track record of success.
  • Accessibility: For transcription, I can use a paid-service such as Trint and I can make my podcasts as long or short as I like.

Podcasting Cons:

  • Equipment: I have yet to obtain the recording equipment I would need to begin podcasting and that’s mostly because of cost, the audio recorder I have in mind (which is the cheaper of the two options) costs AU $180. Unlike the equipment I have for video recording, if I decide I don’t want to make videos, I can still use my camera and tripod for other things, but this isn’t the case with the audio equipment and I don’t want spend money on equipment I’m only going use once or twice.
  • Experience: I’ve been making short films since I was teenager, so I kind of know what to expect when making videos with other people, but I’ve never made a podcast before so I’m not sure what to expect, and that’s a little scary.

Problems that would affect both projects:

  • Effort: Maybe taking on a new writing project isn’t the best idea at this point in time. I’m struggling creatively, everything feels like too much effort and I just can’t, my situation kind of does have a “Going Through The Motions” type of feeling. I’m not doing well with my novel-writing, I had hoped to have a 1st draft of Orion finished by now, maybe I should focus on that instead and figure out why it’s not working for me. There’s a serious concern that I’m just using this idea for a new project as an excuse to procrastinate.
  • Knowledge: Maybe I’m not the best person for this type of project, I have no formal qualifications and I only have subjective experiences to work from,
    I also don’t have the best social skills, a key component required when trying to get people to agree to interviews
  • Interviews: While I would love to do interviews regardless of my platform, getting the right people to agree to interviews will be a challenge.
  • Social Media: I would have to set up some separate elements of Social media for this new project, not a lot but some, possibly a separate Twitter or separate Tumblr page for people to ask questions, and seeing as I’ve just recently had to shut down my Havering blog because I just no longer had the mental capacity to maintain it, I feel a little anxious about the idea. I don’t want to set up social media for this project, only to delete it a few months later.

Maybe this is something I need to think about for a little while longer, however, I’d really appreciate it if readers could let me know what they think. Is this something you’d be interested in? Would you prefer YouTube or would you prefer a podcast? What about a combination of the two? I don’t know, I’m just putting ideas out there. If you’d like to check out my introductory video for my channel, the video is just below:

The Princess Diarist by Carrie Fisher


Title: The Princess Diarist
Author: Carrie Fisher
Social Media: Twitter and Goodreads
Publisher: Transworld Digital
Format and Price: Ebook at $16.99
Rating: 5 out of 5

About The Book:
The Princess Diarist is Carrie Fisher’s intimate, hilarious and revealing recollection of what happened behind the scenes on one of the most famous film sets of all time, the first Star Wars movie. When Carrie Fisher recently discovered the journals she kept during the filming of the first Star Wars movie, she was astonished to see what they had preserved—plaintive love poems, unbridled musings with youthful naiveté, and a vulnerability that she barely recognized. Today, her fame as an author, actress, and pop-culture icon is indisputable, but in 1977, Carrie Fisher was just a (sort-of) regular teenager.

With these excerpts from her handwritten notebooks, The Princess Diarist is Fisher’s intimate and revealing recollection of what happened on one of the most famous film sets of all time—and what developed behind the scenes. And today, as she reprises her most iconic role for the latest Star Wars trilogy, Fisher also ponders the joys and insanity of celebrity, and the absurdity of a life spawned by Hollywood royalty, only to be surpassed by her own outer-space royalty. Laugh-out-loud hilarious and endlessly quotable, The Princess Diarist brims with the candor and introspection of a diary while offering shrewd insight into the type of stardom that few will ever experience.

General Observations:
~Before, During and After: The Princess Diarist goes through three phases: Carrie Fisher’s life before Star Wars, during Stars Wars and after Star Wars. I must confess the before and after periods were more interesting to me that the segment during Star Wars.

That is not to say the during Star Wars segment lacked for interest. I liked reading about how she was nervous for her audition, how she was afraid she would be fired for not losing weight, I enjoyed reading about her hair and make-up sessions and her talking to the cast and crew, these parts were genuinely interesting. But a large chunk of the section was Carrie Fisher being obsessed with Harrison Ford.

As it was a three-month affair with little substance, it was far more interesting to Carrie Fisher than it was to me, but given Carrie Fisher’s age at the time, it’s understandable. There’s a reason why some people re-read their old journals containing passages written by a love-sick teenager and wish to burn them, however, I’m glad Carrie Fisher resisted that impulse (even if it did drag on a little too long).

~Sexism in Cinema: Seriously, Carrie Fisher is one of the greatest examples of Sexism and Misogyny in Cinema, while Harrison Ford and even Mark Hamill get to move on from Star Wars and complete other projects, Carrie Fisher is immortalised in that stupid metal bikini outfit (seriously, Madame Tussauds Wax Emporium has immortalised Carrie Fisher as Princess Leia in that particular outfit with Jabba the Hut holding the chain and lurking right behind her, what the holy fuck?). Carrie Fisher is a brilliant writer and damn good actress and she deserves/deserved better than that.

~Right In The Feels: Unlike Wishful Drinking and Shockaholic, The Princess Diaries were difficult for me to get into, I suppose when you read memoirs detailing Carrie Fisher’s problems with alcohol, then read chapters from a nineteen-year-old Carrie Fisher’s perspective about how she doesn’t like to drink, there can be some disconnect.

I suppose the biggest problem I had with The Princess Diarist was that parts of the book were long segments of introspection of a young woman, starting out as an emerging artist, playing the role of entertainer to cover up the fact that she was deeply unsure and insecure of herself, in other words, it was deeply and uncomfortably familiar.

Wishful Drinking and Shockaholic are the recollections and reflections of an older woman who knows that she has bi-polar, the recollections and reflections of The Princess Diarist are from the perspective of nineteen-year-old woman who isn’t aware that she has bi-polar yet, and is struggling to figure out who she is and what she wants, as well as how to deal with undiagnosed mental health problems.

It was difficult to for me to grapple with the idea that, at one time, Carrie Fisher could be someone like myself, which I suppose was the purpose of the book, one must be a princess before one can become a general.

In conclusion, an interesting insight into the mind of Carrie Fisher, a legendary icon, at a particular stage of her life. It’s a little slow to get into, and there’s not as many jokes, but I consider it a worthy read as I was glued to every page.

Available For Purchase: Amazon | Audible | Book Depository | Kobo Books
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The Dysfunction Junction: Is There A Specialist In The House?

Image Description: a large cluster of smiley faces in the centre of the picture. In the background are multicoloured words against a black background like breath, here and now, accept, track, sense repeatedly printed in the background over and over again.
Image Description: a large cluster of smiley faces in the centre of the picture. In the background are multicoloured words against a black background like breath, here and now, accept, track, sense repeatedly printed in the background over and over again.

Since the end of October 2016, I have been trying and failing to find a specialist doctor qualified to assess people on whether they have ADHD (or possibly something else). One of the unfortunate side effects of Mental Health services is that financial status is often the deciding factor in accessibility.

The only reason I can afford to have therapy sessions for my increasingly unstable anxiety and my pursuit of an ADHD diagnosis is because I have a partner who is willing to support me, he earns a decent wage and we have some savings set aside.

It’s funny just how big a factor money really is in gaining the mental health support services one may require, and by funny, I mean fucking awful. The sheer cost factor was one of the many reasons why I hesitated to pursue an ADHD in the first place, that and, because of my past bad experiences with bad/incompetent doctors, trust is a big factor.

How do I know this person is qualified? What’s their range of experience? Do they have experience with Adult diagnosis? Do they have experience diagnosing Adult Women? And the most terrifying question of all: What if I don’t have ADHD? What if I’ve just been slightly dysfunctional the whole time, and I’ve just been wasting all this time and money for nothing?

Whenever I was given a referral letter to a specialist, I made the effort to google search and attempt to find as much information about these “specialists” as possible. Unfortunately, the clear majority of specialists regarding ADHD are male doctors. I regard this as a bad sign, especially considering the shitty attitude some people and the medical industry have towards Neurodiversity and people who aren’t white cis-boys.

It was why I was so happy when my local GP found a female doctor in Ballarat who stated she was qualified for Adult diagnosis for ADHD and Autism, unfortunately one of the downsides was I would be waiting a minimum of two months before I could see her.

Another downside is that each hourly session was $400, however, I did some research on her, found positive comments, noticed she had a minimal internet presence (a website with a photo and brief bio) and I booked an appointment, expecting the worst but hoping for the best.

I had previously tried to contact a male specialist and due to the rudeness of the receptionist, I never bothered to book an appointment, I figured if you’re that rude to a paying customer, clearly that specialist doesn’t need my money (sad part is that it’s probably true).

But when I contacted Ballarat Psychiatry Group, the receptionist was super nice and very helpful with my inquiries. If you work in the mental health industry, don’t be an arsehole to people over the phone, the people calling up clearly have enough problems to deal with, I can’t stress this enough.

And then the waiting began…

In the almost three months prior to my appointment, I figured it would beneficial to do as much research as possible, print out things to give to the specialist in a bid to minimise the wastage of time. To maintain a vague illusion of organisation, I purchased a specifically set aside compendium-folder (bright pink of course) so that I could keep all my “Mental Health Stuff” all in the one place.

In my view, I had only an hour to distil twenty-eight-years’ worth of dysfunction, I did not have high hopes for this, especially since in therapy sessions I tend to go off on unrelated side notes and forget what I was even talking about in the first place. To try and combat this, I made sure to take lined paper and pens with me, so that I could take notes or make dot-points before the session.

When I went into the doctor’s office for my appointment, she began with the usual scripted dialogue people with when meeting for the first time:
“Hi, how are you?”

I responded with “Fine” automatically, because that is what we are taught to say, we are taught to say we are fine even when we are not (especially when we are not), “fine” is the only socially acceptable answer. Then I reminded myself that I wasn’t paying $400 an hour to be “fine”.

I corrected myself, “Well no, I’m not fine, I wouldn’t be here if I were. I’m inquiring into an Adult Diagnosis of ADHD, I’ve done all this research,” I handed over a bright pink A4 sized document-wallet filled with documents. “And I thought we could start there.”

The fact that she discarded the document-wallet pretty much as soon as I gave it to her was a bad sign to me, however, it was the expression of bored disdain that irritated me (and continues to irritate me whenever I think about it, yes, I’ll admit it, I’m at times terribly petty).

It turns out she’s not qualified at all to assess people on whether they have ADHD (even though it says so on multiple internet resources). Apparently, she primarily dealt with patients who came to her looking for help with ADHD, but it turns out they don’t have ADHD, they just have Anxiety or Depression. Personally, I feel that’s a weird kind of specialisation to have, I mean, what would she do if she came across a person who had Depression and Anxiety but also had ADHD as well?

Anyway, I was offered two choices, choice A was she could email a referral letter to my local GP doctor, and then I would have to book an appointment with my local GP and obtain the referral letter via my GP (the Ballarat doctor couldn’t just print out a referral letter then and there and give to me). Choice B was that I continue with the appointment and she would attempt a paper-form of assessment over multiple sessions and then refer me onto a specialist.

My thought process was that a person who isn’t qualified to assess me is going to ask me questions (if she’s not qualified, how can I trust that she’ll ask the right questions?), over multiple sessions (3 x $400 = $1200) and even at the end of that, I still wouldn’t have a definitive answer because at the end, she’d still have to refer me to a specialist.

So that would be at least three appointments with her and an appointment with an actual qualified specialist (for the sake of argument, let’s assume the qualified specialist charges at the same rate), so that’s $1600 worth of appointments with no guaranteed answers. I’ll admit my first knee-jerk reaction was “shove that up your arse” but somehow, I managed to contain my frustration and annoyance at having my time wasted, although I’m sure my emotional state was probably obvious.

I chose to cancel the appointment and deal with the ADHD specialists directly (or as directly as I could).

I was ranting to my councillor about this and she gave me the suggestion of contacting the RMIT Psychology Clinic and encouraged me to inquire if they had the ability to perform an Adult ADHD assessment.

My councillor informed me that the doctor seeing me would be a graduate doctor (with a senior doctor to supervise) which was why the session would be cheaper. So, I decided to check this out first, and keep the ADHD specialist referral letters for later, in case the RMIT thing doesn’t work out.

Unfortunately, and perhaps this is only me, but I found the website confusing and vague so I’ll try to add more information.

Without a concession card, the doctor session will cost AU $30 and the Assessment Report will cost AU $100 (plus the cost of petrol and possibly parking, IDK, the place is located in Bundoora), however, I want to point out that if you have a concession card, fees and such will be cheaper for you, I can’t say specifically because it will depend on what you’re pursuing the clinic for (the website does have some information about fees, I just didn’t find it clear enough for me).

You will need a referral letter from a GP to gain access to the service. My GP didn’t know about this service (Latrobe University also has a psychology clinic as well in case that university is closer) and, as a result, the RMIT Psychology Clinic has been added to the database my local medical centre maintains for services like these, so hopefully this will help other people too.

When I contacted them, it did involve a bit of fluffing about (a short time on hold while they found the right department/right doctor to speak to, standard university stuff really), but my assigned doctor got back to me within an acceptable time frame and I’ve only had to wait a couple of weeks before I could get an appointment.

Like with all good deals that seem too good to be true, there is a catch, one of the conditions of gaining access to a cheaper assessment is that my appointment will be recorded for training purposes. Apparently, according to the doctor I’ll be seeing for my appointment, a lot of people don’t engage with the service because of this, which is why I’ve made sure to mention it directly.

I’ll be going for my appointment with the RMIT Psychology Clinic next Wednesday and my thought process on this is that perhaps it’s a good thing a recording of my appointment will exist, hopefully it can be used as evidence to help support other people like myself.

Although I don’t have high hopes at this point, I must test out my options, even if this is simply a process of elimination. I’ll ask if I can receive a copy of the recording. I should be able to under the Freedom of Information act.

Speaking off obtaining information, I’ve also been investigating into getting a copy of my records from my forced attendance at Orygen Youth Health, now I wasn’t forced to go there because of a court mandate.

The doctors involved with Orygen Youth Health just repeatedly told me I had to go to appointments and I couldn’t leave the program until I was a legal adult. As an adult, this comes across as “that might not be technically illegal, but definitely sounds unethical” category.

Making a traumatised teenager feel as though they have no choice but to attend therapy sessions with a doctor who won’t listen and keeping said traumatised teenager ignorant of their medical rights belongs in the “Dodgy as Fuck” category.

But then again, the Orygen Youth Service was free for me to access because my mother and I had concession cards, so maybe this is more of a “you get what you pay for” type of situation (not that it makes what they did okay).

I began investigating my Orygen Youth Service medical records back in December and still haven’t received my records, but my thought process was that “What the hell was that Doctor thinking?” and then I needed to know the exact answer to that question, or at least the closest approximation I’ll be able to obtain.

I also thought as I’m not doing my assessment through the education system (not by choice I may add) it may be beneficial to obtain “official” medical documents and see if they can help my cause. Although, I have strong doubts about this.

If you’re in a position where you’re able to pursue a diagnosis for a Neurodiversity condition through the educated system, I encourage you to do this, Doctors are like University Admins, they require an almost bureaucratic level of paper-work to justify you getting an appointment.

I just wanted to add thanks if you managed to get this far through the post, I know it’s absurdly long, especially since it’s a super long post about how not much progress has been made, hopefully next Wednesday will put me in better position and I’ll know where to go from there.

The Diverse Books Reading Challenge 2017: The Devil Is In The Details

Image Description: a title page with the words Diverse Books Reading Challenge 2017: The Devil Is In The Details in rainbow coloured word-art with four red roses in each corner Image Description: a title page with the words Diverse Books Reading Challenge 2017: The Devil Is In The Details in rainbow coloured word-art with four red roses in each corner

One of my biggest struggles with academia was that my essays were perfectly clear to me, the reasoning and structure of the article was obvious. It turns out, this is usually never the case, it usually always turns out to be that that my essays only make sense to me. So, my apologies if my previous instructions seemed confusing and difficult to follow.

I have a great love for the movie Nightmare Before Christmas and I also have a strong emotional connection to Jack Skellington: a being with the enthusiasm of a thousand passionate actors but the common sense of a wet cabbage. I’m so eager to begin a project, I forget the finer details required. This post will hopefully flesh out the Terms and Conditions in greater detail, however, please contact me if there is any need for further clarification.

How To Review

In order to meet the Minimum Standard of Review, participants need to include the following:
-A star rating from DNF (did not finish), 1 star, 2 stars, 3 stars, 4 stars and 5 stars.
-One aspect of the book the reader liked
-One aspect of the book the reader didn’t like or thought could be improved
-Answer the question of “Would you recommend this book to others?”

In order to meet the Maximum Standard of Review
-A star rating from DNF (did not finish), 1 star, 2 stars, 3 stars, 4 stars and 5 stars.
-Three aspects of the book the reader liked
-Three aspects of the book the reader didn’t like or thought could be improved
– Answer the question of “Would you recommend this book to others?”

Pictures and gifs can be used in place of words in a review. Participants can also make video reviews and just talk about the book (maximum video length 10 minutes or under), participants will have to provide a hyperlink to the video. Participants can also make audio recordings of their review (maximum audio track length of 10 minutes or under), participants will have to provide a hyperlink to the audio-recording. If participants have an alternative method of reviewing that I have not mentioned, please feel free to contact me and discuss this alternative method with me. My email is brkyle(dot)author(at)gmail(dot)com

The participant then publishes the review either on their social media platform of choice or goodreads.com, they will then click on the little blue-frog icon below

The blue frog will lead to a separate page where participants will be able to add their link to their review.

Books

Any physical format is acceptable, any format of electronic books (for example: epub, pdf, mobi) is acceptable, the main objective here is to connect the potential reader with the author, so if the review is positive and you want to recommend the book to others, you need to leave a hyperlink that allows people to access the book.

When it comes to purchasing physical books, I tend to recommend purchasing via through Book Depository because they offer free delivery to Australia, but I understand that this might not work for everyone, especially for Indie Authors. Kim raised valid points about accessibility and as along as the potential reader can access the book, that’s what counts.

Due to the complexity surrounding Fanfiction, I will have to exclude Fanfiction as reading material for this giveaway (perhaps I will reconsider this for the next giveaway, but not for this one).

What kind of Disability theme/structure am I looking for in a book?

My personal approach to reading Diverse Books is to look at the genre of the book first, then I consider the Diversity element. I don’t want to read books just for the sake of Diversity, if I do that, I’m going to struggle and argue with myself (“I must finish this book, it has diverse characters in it!” “But it’s so boring!”). I like Diversity Books that have the main characters doing things other protagonists do. Disabled people are just like everyone else and the narrative should reflect that.

Kim also offered some good advice:
“I’d actually look at determining what is and isn’t disability fiction via protagonist: if it features a narrating protagonist disabled in some way, it counts. If if doesn’t and is therefore about The Abled Person’s experience, no. Of course, you’ll get stuff that isn’t written by folk with disabilities and is written awfully – *cough*Garth Nix*cough* but the job of a reviewer is to read that and mark it so others don’t, not to read only great representation.”

So, how I verify that I’m reading a book about Disability that meets that criteria?

Well I’m not sure if I can answer that in a definitive way. Unfortunately it’s difficult to determine what type of disability a book is about (Side Note To Authors: Mention the disability you’re writing about directly in the blurb, I’ve had to spend a considerable amount of time reading through reviews to determine which disability a book is about, I shouldn’t have to do that) let alone make sure a disabled person is the main protagonist.

To be honest, I think that the most I can do is make a list of books, list what type of Disability is featured and let people decide if they’re interested or not. I’ve done some researching and I found out that Corinne Duyvis (one of the founders of Disability in Kidlit) has a Goodreads account and a Bookshelf dedicated to books with Disabled Main Characters:

~Corinne Duyvis’s Bookshelf: Disabled Main Characters

So, I used this bookshelf, as well as some recommendations from other book blogs, to make these two Goodreads Bookshelves:

~B.R. Kyle’s Bookshelf: Disability

~B.R. Kyle’s Bookshelf: Mental Health

Now, unfortunately, I haven’t been able to verify all of the books on the Bookshelves via Disability in Kidlit’s reviews and honor roll and I also haven’t read a lot of them myself. There is also a lot of the books on the bookshelf that are classified as belonging to the Young Adult genre, which might not suit everyone, so I’ve tried to balance out the Young Adult novels with Adult Memoirs, but there’s not much else I can do.

Please check out the links and see if those books work for you, but it’s okay if they don’t or you already have your own book list organised. I’ve spent the majority of today and yesterday working a list of books about disability that have been given the Disability in Kidlit Seal of Approval (if people would like to make suggestions, please do so in the comments section below):

Six of Crows by Leigh Bardugo
Category: Disability and Own voices
Disability in Kidlit Review

A Time to Dance by Padma Venkatraman
Category: Disability (amputee) and POC main character
Disability in Kidlit Review

Otherbound by Corinne Duyvis
Category: Disability and Own voices
Disability in Kidlit Review

On The Edge of Gone by Corinne Duyvis
Category: Disability and Own voices
Disability in Kidlit Review

Far From You by Tess Sharpe
Category: Disability (Chronic pain and mobility issues) and GSM
Disability in Kidlit Review

Me and Earl and the Dying Girl by Jesse Andrews
Category: Disability (cancer) and mental illness
Disability in Kidlit Review

What I Couldn’t Tell You by Faye Bird
Category: Disability (selective mutism)
Disability in Kidlit Review

Reaching for Sun by Tracie Vaughn Zimmer
Category: Disability (cerebral palsy),
Disability in Kidlit Review

The Elementals by Saundra Mitchell
Category: Disability (One MC is recovering from Polio)
Disability in Kidlit

When Reason Breaks by Cindy L. Rodriguez
Category: Mental Health (Depression and Suicide)
Disability in Kidlit Review

Two Girls Staring at the Ceiling by Lucy Frank
Category: Disability and Mental health
Disability in Kidlit Review

Evidence of Things Not Seen by Lindsey Lane
Category: Disability (Autistic MC)
Disability in Kidlit Review

Don’t Touch by Rachel M. Wilson
Category: Disability and Mental health (OCD)
Disability in Kidlit Review

Five Flavors of Dumb by Anthony John
Category: Disability (Deaf MC)
Disability in Kidlit Review

Blind Spot by Laura Ellen
Category: Disability (Blindness) and Own Voices
Finding Yourself in a Book: Why I Wrote Blind Spot by Laura Ellen

You Look Different in Real Life by Jennifer Castle
Category: Disability (Autistic MC)
Disability in Kidlit Review

The Rest of Us Just Live Here by Patrick Ness
Category: Disability and mental health (OCD and Social Anxiety)
Disability in Kidlit Review

When We Collided by Emery Lord
Category: Disability and Mental health (Bi-polar)
Disability in Kidlit Review

Autism Goes to School by Sharon A. Mitchell
Category: Disability (Autistic characters)
L.C. Reviews: Autism Goes to School (YouTube video)

Diverse Books Reading Challenge 2017 – Disability Booklist (PDF)

Diverse Books Reading Challenge 2017 – Disability Booklist (Word Document)

I know that’s probably considered a short list, but I figured it was a good starting point, these are meant to be guidelines and I don’t want to overwhelm people. I also don’t want to start going into “English teacher territory” of telling people what they should and shouldn’t read, however, these are reviews written by disabled people, with disabled people talking about books written about their specific disability, and I think their judgement of what constitutes as acceptable representation is the standard the publishing industry needs to aiming for.

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